Contact Me

This blog is to help others know they are not alone. Please remind me that I am not alone either…

Questions, Advice, or a story to share?

I’d love to hear from you!

4 Responses to Contact Me

  1. Jenne says:

    I’m 8 months pregnant sitting in the hospital with my husband who is 12 days post accident. My other 2 babies are 4 and 2 and are being taken care of by their grandma. I am going to buy your book to read to them. But I am curious to know if you have written anything about the practical side of navigating through these first few weeks of hospital and rehab. Anything you would have done differently, or anything you thought was particularly helpful.

    • Jenne,

      I am so sorry you are going through this. My heart always breaks to learn of another family having to face this same tragedy. As far as navigating through the first few weeks, there are many things I would advise. Though some of it depends on your husband’s injury. Is he talking? Walking? Able to eat on his own? Can he still read? Does he remember you and the kids? These are all important milestones that can help determine the extent of his injury and the length of his recovery. Has he started rehab? If you can, attend his rehab sessions so you can see the extent of his injury first hand. This will give you greater insight on how to deal with him when he comes home. Bring pictures of your family into his hospital room. Try and make it familiar. If you are letting the kids visit him, keep it short. I didn’t bring my 5 year old in as I didn’t want him to see his dad that way (and this is something I have never regretted).

      My main advice for you right now: Do not believe the doctors! They will be quick to tell you the worst, or that they simply don’t know how we will recover. Because they don’t. Most of the doctors only see TBI patients in the beginning of their recovery. They don’t see them long term or after years of therapy, so to them TBI always remains at the beginning stages. They will resist from giving you “false hope” as they don’t want to be liable in the future. However, right now you need hope, whether it’s real or not. Hope will keep you going. So have hope; for your kids, for your husband, for your future. And please know that he will only get better from here; not worse.

      You have inspired me to write a post on those first few weeks in the hospital, so I’ll hopefully have more to add there. Please contact me here or (email) if you need anything (or just to talk). Again, I am sorry.

  2. jallie2 says:

    What a blessing to come upon your site. I am the adult child of a mother who suffered a TBI when she was 17 (1967). For years I have been struggling to process the relationship with my mother. not knowing the full story – and not truly understanding what TBI meant for the parent-child bond left me inserting a narrative that was not helpful for either of us. I am currently working on my own memoir – it has been on hold for years, because I did not know how to have the conversation in a way that was healing. THank you for being honest, vulnerable, and brave enough to share your story. I’m looking forward to reading your book.

    • Jallie2,

      Thank you for the kind words. I’m so glad you found my site! I think it’s important for us to find others who are experiencing this same journey. I’m sorry to hear about your struggles with your mother. As a spouse of a TBI survivor, my perspective is quite different than that of a child. I remember my husband before his injury, so I am constantly comparing our life now to our life then. I’m sure this is something you can’t do as your mom has suffered with this since before you were born. From watching my own children deal with his injury, I see the struggles and confusion sometimes in accepting the issues their father deals with (noise sensitivity, etc.). I would be interested in reading your memoir to gain insight into what my adult children may be facing in coming to terms with the injury. In realizing that they have to deal with something their peers do not.

      Due to life circumstances lately, I haven’t posted on my site for a while. Though I do check it constantly and stay in contact with those who need an ear or advice or simply want to connect. I do plan on posting in the near future, but until then feel free to contact me anytime!

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